So it’s been a minute.
Yeah, I have been gone for a while, so it’s like this… I have 3 autoimmune diseases. Ceoliac, CIDP and C1Q.
The coeliac is gluten intolerant but I don’t find this a problem at all as it has been 26 years without gluten and I am quite used to it.
CIDP – that’s the short way to say Chronic inflammatory demyelinating polyneuropathy AND lastly C1Q.
CIDP AND C1Q are shit that’s all I can say.
To give you a little back story.
It was 4 years ago in August and all of a sudden I started to feel weird and that’s all I can say, not sick just weird. My fingers were numb on the ends and I started to walk like I had just gotten off a boat.
I went to the doctor and they did blood and then I came home and waited for the doctor’s rooms to call me which they did at 5.30 pm and asked for me to go down and to take someone with me. The doctors told me that they did not understand what my blood was saying and that the best thing for me to do was go straight to the hospital. So off we went and when we got there it was terrible the doctors looked at the reports and started taking more blood, lots of blood and I was put into isolation for 24 hours when all was good I went to intensive care and went to sleep, when I woke up I was completely paralyzed the only movement was my hands, feet and head it was terrifying.
The doctors did so many tests and operations trying to work out what had happened and meanwhile, I was in the most terrible pain shooting up my spine so some really heavy painkillers were in need.
One and a half months went by not knowing anything and then I was told that it was 2 autoimmune diseases that had shut my body and some organs down. Now knowing this the correct medication came on board and then a very long recovery.
Four months later I had been through a lot but I had some feeling back in my legs and had started to walk again with help I finally returned home and tried to get what had happened through my head and continue where I left off. No that didn’t happen.
Well to this date I am still trying to get back to some sort of normal. Each day I try to do things around the house and garden but it is a struggle. This is not how I thought my life would go when I got to retirement age.
I stay positive most of the time but I do have some days that a big cry helps. My shop keeps me inspired and wanting to create something new.
These autoimmune diseases are here to stay and I do know it will probably get worse over the years but I try not to go there.
My health has been up and down over the last year and I simply just didn’t have it in me to write on my blog, I know that was not such a good idea but I am sure you only want to read my blog knowing that it is my real life and because I have been struggling with most daily activities I didn’t want to come here and just talk about how crap I feel. I am starting to feel much better so I have sat down and put a few words to paper, I am not saying I will be here every month but I will try to.
Until we meet again
Jen (Jenzo) (Mum) Mumzo) (Muma)